Sunny Saturday 9th April 2011

Today is going to be a long day, im waiting in for a new fridge, delivery times befor 1pm lol so i bet i get the last slot. Anthony has took Joshua fishing with him for the whole day, so its just me and the girls today, when Tessa and Tegan are left to it they will play nicely all day together, so it looks like today will be a book day snuggled up on the sofa reading. Well that is after i have cleaned up, but first of all i must shift my ass off of this computer lol. My head was so sore last night, not as in head ache but i could feel tightness from the pressure and i got the dreaded vibrating eyes yet again, i hate them, i dont know if they are from the Diamo or the IIH but it is horrid, I cant focus on anything when it happens and it lasts for hours, it started last night at 8pm, and i had them still at 2am when i woke for the 10th time lol. I am doing better this week as far as the diet is concerned, so hoping i will see some loss this week, i dont want to let the girlies down, everyone is doing so well. IIH has made the news several times this week, kicked of by Sarah, then Tracey, then Heidi and Adelle all doing their bits for raisin awareness, i think they are all fab, i wish i had the confidance to do something too, but i never know how to talk to people, as i stutter and mumble and forget my words lol, I always forget whats just been said and look silly. Bloody IIH lol Im looking forward to going to see a new doc, im printing off loads of information this time, as i WILL NOT be forbed of anymore, i know my body better then any one them, Well i really must go and clean up a little, then relax and TRY and read for a while. x x

Me Again

Well on 31st March i went to see my neuro, Dr Mills and i find out he is only a registra, when i talk to him he just nods his head, i feel like he never listens to me, i told him i still had a tight feeling in my head, i have vision problems and a whole list of other stuff, but he put it all down to IIH triggering migranes, he woulnt do a lumber puncture to check my pressure, i asked him as i felt it was high, but he insisted on telling me it wasnt because i cant hear a whooshing noise in my ears, However i can hear a loud pitch whistle in my ears that some times hurts becuase it is so loud, after sitting there with him i asked to be referered to someone else who knows more about IIH, he has requested that proff vernon from QMC see me insted and i have already had my letter through, i am back for a field vision on 25th may then see the proffessor in june, i cant wait to talk to someone who knows more about IIH and wont dismiss everything i say. I didnt loose any weight for my first week of the challenge, i just havnt felt well enough to excersise, but i have weighed myself today and im 13.13. so hopefully by monday i would have lost at least a couple more pounds, makes me feel more determined to keep it up, Now the sun is out i feel a little better and moving about more, so im cleaning the house top to bottom, sorting out draws and cupboards etc, getting stuck in, it is good excersise and i will have something to show for it too, I used to be able to put on music loud and wizz round cleaning, but now the music has to be low so it dousnt hurt my head, music used to be my life, i love it i have a large collection of over 1000 cd's but hardly listen now, strange how things can change in a year or so. I took my daughter Tessa who is 3 to hospital yesterday for a tooth out, on she banged whilst playing and climbing about lol, it was he top front tooth too, she looks a bit odd now with out it, i hated the op as she had to have a general, i went in with her till she went to sleep, i didnt like it one bit, i sobbed loads when i left her, she took ages to wake up too, i would hate for any of my kids to get IIH, i dont think i could stand watching them go through all of the LP etc and operations, i have huge respect for the mums who do, they all deserve a big hug. Well im off for a bit i cant sit here for more that 20 mins as the pins and needles come on so strong i cant feel my feet or hands, i must buy a better computer chair, see if that helps.